It is confusing and all those names for TRAb don’t help!
I have read many stories of people who’s doctors flat-out don’t believe in treating based on TRAb and they end up paying out of pocket to get the testing done 
Mine does which is why I have the interest and needed to understand my treatment.
I hope you’re not suffering too much with symptoms 
Thx for asking @Sevencasper The tremors are getting a little better. It was happening only when I started doing something with my hands (like messing around with my vape stuff). My primary doc calls them Intention Tremors, which I had never heard of. It happens when you start doing things with your hands. Lack of energy, a bit losing balance. But I also have the D deficiency for the first time so I’m not sure what’s what. Probably a combo platter of both, I guess. I’m losing patience with this whole thing and tired of trying to educate myself about it. I very much appreciate your help and enthusiasm in pursuing answers.
I did find acupressure points on the ear for the endocrine system and when I work them they’re very sore. I guess there are alternative treatments but I’d like to speak with an acupuncturist at length before jumping in. I’d be paying out of pocket. Oh I forgot to mention, my primary doc heard a heart murmur. Maybe I mentioned it already? My memory is not at the top of it’s game right now. Geez, I just learned that vitiligo is caused by Grave’s, too. I started noticing small white spots a long time ago, in my skin, like a loss of pigment. I thought it was sun damage.
Oh the tremor is awful, makes it hard to get things done for sure.
I looked up heart murmur & they have overlapping symptoms too but the murmur itself can be benign.
Hopefully you’ll start feeling better in a few weeks with the anti thyroid (I’m assuming your on one?).
The vitamin d will probably take the longest I guess but we are all different.
That is the hard part especially when when feeling great in the first place, it can be overwhelming.
I’m still not sure of a lot of things but understand more than I did even this time last year.
Try to rest, you have a lot going on
Yes, METHIMAZOLE.
@Sevencasper I’m talking to an acupuncture clinic tomorrow. They accept my insurance but typically it’s only accepted for back pain. We’ll see. They also offer community acupuncture which s less costly than a private session. That’s fine when you don’t have to take your clothes off, ha ha. I also saw payment based on income.
My doc got back to me about the TRAb test. I can’t remember the details he said but yes, all numbers pointed towards the antibodies returning to attack my thyroid…lovely. I also sought out spiritual guidance this morning. I’m making use of all support available to me right now because I’ve had it! It’s not just the Graves but other things going on in my environment and it’s not helping my stress levels. It’s a whole big rat’s nest, lol.
Sorry to hear you’re feeling stressed
Hopefully the methimazole will help to get your levels down asap and that will help
I haven’t had acupuncture but it sounds interesting, I hope that they can assist. Even if not thyroid specific, I’m sure the relaxation aspect of acupuncture will offer some benefit.
As long as
[quote=“muth, post:34, topic:274378”]
you don’t have to take your clothes off,
[/quote] as you said 
I know that feeling, I’m dealing with crap too this past week and even with stable levels, I feel off-kilter, it makes me 
so I can imagine you feel like you just want to hide.
I hope you can manage some distractions to get you through this rough patch.
My distraction today is making pasta sauce today so I can make a batch of meatballs and can them.
I’ve had it in the past and it really worked well. The first time was for sciatica. It does treat Grave’s and other thyroid conditions so we’ll see how it goes.
Yum! I was thinking of meatballs and sauce just the other day. I’m going to have to make that tomorrow. Thx 
That’s great the acupuncture worked.
Found a couple of article for acupuncture & Graves’
They’re in the canner! 6 quarts of meatballs & sauce and 2 quarts of just sauce.
I wish I’d bought more mince, the meatballs turned out fab.
Thought I’d drop in with an update. How have you been @Sevencasper ? 4 and a half days after my first treatment I felt really good then halfway through the 5th day it was like someone pulled the plug. I’m still not feeling right and then it occurred to me that maybe taking the methimazole together with acupuncture is causing my thyroid to go hypo. I lack energy. Idk, but I do know that I’m sensitive to drugs. I’m tempted to stop taking the meds and let the needles do their work. I’m so sick of Big Pharma’s poisonous pills.
That happens to me all the time!
Everytime I think I’m over the hump, I roll back down 
It’s sooo frustrating.
Could be but I don’t know how long it would take for the acupuncture to kick in? maybe it’s just the methimazole kicking in? I’m sure you’ve been on it long enough to take a decent affect - probably depends how high everything was too?
That has been my issue since the get go but “your levels are good”
Last bloods in March were great, antibodies under 1.0 as well but endo just said to reduce the methimazole by half every other day.
I’m also still reducing the pill too and he said that & the reduction in methimazole might cause an increase in thyroxine, but I’m still on the additional thyroxine too.
I’m pretty much waiting to go Hyper as it’s been more than six weeks now so the methimazole reduction should be kicking in.
Thing is, he said next bloods in September? 
I will just have to wait for symptoms I guess and then get bloods done to see.
I am bloody hungry all the time at the moment so I am wondering 
just like you.
^^ exactly how I feel. Do I reduce the thyroxine a bit as well now
I can’t even ask in that fb group I was in either, I got kicked out The group owner didn’t like me telling her not to dismiss people I guess but of course she hasn’t bothered to tell me so. Stoopid woman blocked me from the group but not from her personal profile 
lucky I’m not an irrational stalker type. Still wondering if I should message her and tell her but I’ve got better things to do.
I’ve just been keeping busyish (to keep my mind off it) around the house now the weather’s cooled off a bit and feeling pretty good over all. Tired today though, I had a stall at local market yesterday and I haven’t “peopled” that much in like, a year
God, I think and talk too much
No one should be dismissed! She sounds like a piece of work. Just as well, you prolly don’t need the aggravation.
What do you sell at the stall?
Like I said, I don’t actually tgatbwas the reason, so I’m just trying to let it go.
I have a redbubble/print on demand products. I upload my abstract, mostly hand painted designs then purchase & sell the products.
There are pictures in this thread:
Are you feeling any better today?
Those are really NICE designs, love 'em! You’re gifted 
Thx for asking. This is the second day off methimazole and I feel pretty good. More relaxed, a bit more energy. I have another acupuncture session tomorrow. I set up 10 consecutive appointments for $200. $20 a pop is a whole lot cheaper than seeing my Endo. I have a co-pay of $65 now that he’s no longer in my network. Thank gawd it’s only twice a year. I’m determined when I see him in August my labs will be normal. Fingers/toes crossed.
Aww thanks 
That’s good to hear.
I really hope the acupuncture works 
for you.
Drs are so $$$
Thought I would update as I just got felts from the Endo.
Thyroid levels are “picture perfect” and I’m to reduce antithyroid by 5mg/day (about a third).
Other symptoms still remain…. So going to see a dr about Menopause Hormone therapy as my symptoms align & Endo confirms Menopause.
I really am confused tho…, both Endos said being on the pill (continuous for Endometriosis) should negate any Meno symptoms.
But my symptoms have increased while on it plus increased more since coming off.
Maybe because they’re synthetic??
I really don’t know
@muth how’re your levels doing now?
Thx for asking and I hope you get things sorted out with your symptoms. The last time I took hormones I was getting naturally occurring plant hormones from a Gyno named Dr. Schock, lol. She’s one of the doctors who pioneered natural hormone therapy. It was in a cream form that you rub into your skin.
Everything at my last Endo visit, August 23 was great, even my blood pressure and D3 and I’m not on BP medication. But there was an anomaly. My doc can’t understand why I went into a quick remission with all my levels normal except my TSI levels. They were pretty high. I feel fine though. Doesn’t seem to make sense, to me anyway. I do want to resume acupuncture because I really enjoyed it.
I’m hoping that is the answer.
I guess that all that really matters, I’m glad your feeling good 
Thank you @Sevencasper I forgot to mention that my thyroid isn’t enlarged anymore. Probably the most important part, der!
I wish I could tell you more about the hormones but the reason I want to resume acupuncture is because it made such a quick difference in how I felt. It may not claim to cure Grave’s Disease but it does promise to put your body in homeostasis and, to me, that’s the key to all around health, a balanced system. Idk if acupuncture is something you’re interested in or is available to you but it certainly can’t hurt. I would look for a place that offers community acupuncture like the place I’m going to. Much more affordable.
Good luck and keep me updated 
That’s great news too!
It’s funny how the disease manifests differently for everyone. My thyroid has never been physically inflamed or enlarged. Endo said it was “tiny” on first exam
Saw GP yesterday & after some more tests, I will speak to the women health dr about MHT.
I am happy with that as previously I have been dismissed when suggesting my symptoms might be menopausal side effects.
Fingers crossed the tests come back as they should
Yes, good luck with that.
Being dismissed is not uncommon. lol.